Dr. Kinga Pozniak is a socio-cultural anthropologist and a postdoctoral researcher at CanChild Centre for Childhood Disability Research. She conducts research on the experiences of disabled children and their parents, family-centred service, and family engagement in research. 

Anouk Lanouette Turgeon is the mother of two extraordinary children: Éli, who lives with Down Syndrome; and Lhassa, who gave the world the most beautiful smiles in human history before she died from a genetic disease in November 2019 at age 5.

Anouk works as an employment counsellor for people with an intellectual disability or autism. And in a parallel life she occasionally dares to be an author: her first novel was published in September 2021 (Une vie fretless ou comment j’ai accouché d’une méduse, XYZ).

In this week's session of Grand Rounds, Anouk shares her perspective and the story of her late daughter, Lhassa.